Day 4
After a good rest, I started today feeling much better, and I was ready to get the treatment going again.
I had a few cups of tea and coffee and cheese on toast for breakfast.
On the request of Emma – my MS Nurse – I also head in a little later today; she wanted time to talk to the consultant about whether the treatment would be a good idea today.
I head in for 9:00am today. I was greeted by Emma and given the good news that I could continue treatment today.
The normal morning routine proceeds; baseline readings, Aciclovir and Chlorphenamine, and having the cannula popped in – Katherine distracted me this morning by showing me pictures of the children and our dogs; I can’t help but think of Wednesday’s little moment, but it works and I’m ok.
Then once again I had IV steroids and saline flush before starting of Lemtrada – I was super sleepy and I napped most of the morning. Between naps, Katherine and Nikki have great pleasure in telling me they managed to do my 15 minute check without waking me.
Today has seen more of the rash and tightenings of my chest – although this seems to again come on a little later in the afternoon. The tightness isn’t nice but I know with treatment it passes quickly; the Nebuliser and Hydrocortisone have done a good job.
I continued to snack on bits throughout the day and drank plenty of water and tea. I had a few chips for lunch when Katherine nipped over to the cafe; I really didn’t fancy another jacket potato!
I also kept napping; I have found it is worth using some headphones with music to drown out the noise of the buzzers – it was a busy day in the day centre and it can be difficult to switch off with the buzzers going.
Once home I ate normally. I was still feeling tired, it’s just like bad MS Fatigue so nothing I’m not really used to. Getting plenty of sleep is the best thing, I feel a bit guilty about it as it leaves Katherine on her own but needs must.
Mostly I was relieved to have got today out of the way and the treatment underway again after yesterday’s events. Hopefully tomorrow will pass without too many dramas.
You can read Day 5 here.
