This seems like the best way to make my decision this evening, I’m choosing the next lot of drugs; they’re the next stage of treatment to help me battle the MS.
Today’s been another testing day but we’re ending it in fits of laughter! I keep making a “Dohhh” noise – it’s made Katherine cry tears of laughter! We’ve also cried real tears too; it’s been a bit emotional. We had a group call with my parents this evening, resulting in us all crying at some point. I then laughed out loud (first time a proper sound has come out of my mouth in a couple of days) on the kitchen floor with Dexter (the dog), which made us both cry happy tears.
All the messages we’ve received over the last 24hours have been so positive – thank you to you all.
So, today’s scan may have shown a new lesion on my brain stem (it connects everything to the spinal cord, a sort of gateway) this would explain my speech issue and some of my other symptoms. The new consultant was really good today and took the time to listen (to Katherine and Mum anyway) and explained everything – I was impressed with him! (which makes a change).
So I’m back on some Steroids – back to tasting nuts and bolts again for a few days, but hopefully they will help curb some of these symptoms too. We will then choose a new therapy and move forward.
I’m feeling super positive even though it’s been a testing 48 hours. I’ve meet some really nice people that have made me laugh and smile, and Katherine and Mum have also done the same, In fact as I stumbled along the corridor earlier I told them to stop laughing at me!
I even brought a smile to the patients we met in the out-patients department and the team in the MRI department – one of them even got a hug, which she seemed very happy about, hehe! (she was helping me to stay upright as we walked out of the scan). 🙂
Today has also been super tough for my family; I can see how powerless they feel but they’ve been so supportive and kept so strong. I’m so grateful to have them with me – love you all so much.
Katherine has yet again shown how amazingly strong she is at dealing with everything, she’s spoken for me, been with me every step of the way, kept nagging me to eat and drink, in fact the only time she hasn’t been with me is when she’s gone to get supplies or add money to the car park ticket. I’m blessed to have her, she’s wonderful, love you xx
Now, let’s keep moving forward.
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