When I talked to the nurses yesterday they said in their experience that it’s normally day three before you start to see any side effects so I’m hoping today won’t be too bad.
The routine is the same as yesterday; cannula, baseline checks and medication to combat the potential side effects and then after the saline and steroids another four hours of Lemtrada is started on the drip. This afternoon has gone fairly well although about half way through I began to get a bit of a rash, (which I was expecting at some point)l I was given some extra anti-histamines and it cleared fairly quickly and as Katherine and the nurses reminded me a lot – I resisted the urge to itch! We took a couple of pictures of the rash to monitor it –
Apart from that it was an OK day. It is pretty boring so take a good book or something! Towards the end of the afternoon I started to feel sleepy and then I fell asleep in the car on the way home. Once I was home I went straight up to bed and slept till around 8pm – so I had a about 2-3 hours sleep. When I woke up I had a bit of dinner, a chat with Katherine about the day and a cuddle with Dexter (the dog) and then I went back to bed.
During the night I got some very bad stomach cramps – it reminded me of the pain I got when my Crohn’s disease was bad – I just rolled around in pain, practically in tears – it was awful. I eventually got back to sleep for a few hours and before long we were onto day 3…. Check back for Day 3,4, 5 and more soon…
And find all the other Lemtrada posts here.